S4 EP 11 | Taylor Part 1 | Milo's Medically Complex NICU Journey

On this week’s episode, we have the honor of sharing Taylor’s motherhood journey with her son, Milo! Milo was born full-term and had a NICU stay of 188 days that included 2 ambulatory transfers and 3 hospitals.

Upon birth, Milo was diagnosed with Vacterl association after being born with a VSD, TEF, and an ectopic kidney. He underwent his first of 3 TEF repairs at 3 days old, 2 of those repairs included opening up his chest, and he also underwent multiple dilation procedures on his esophagus, open heart surgery to repair his VSD, multiple blood transfusions, and a g-tube placement surgery.  (Amongst many other things!) After being told he could potentially make it home by Halloween, then Thanksgiving, then Christmas he went on to spend many more milestones in the hospital before finally making it home in time for Mother’s Day!

Not only is Taylor’s story special because of Milo’s resilience, but also because of the resilience she showed throughout her stay as a pandemic NICU mama and a mama to her older child Charlie. We hope that all of our pandemic NICU mamas feel seen, heard, and validated throughout this episode. You journeyed through so much alone - but we hope that you feel surrounded and loved by this sisterhood today.

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